The Health Baloney – Three Months Later

☆ June 2, 2015

So much has changed in just the past two weeks. My energy has popped to a happy level, and my voice came back, enough for my doctors to cancel the appointment they had made for me to get scoped (to see if thyroid surgery had damaged my vocal chords or nerves). My voice isn’t 100% back, but it has improved enough to indicate that it will continue to improve.

I’m thrilled to avoid the scoping appointment and spare my bod from the additional stress – I’ve been far more concerned about the state of my adrenals than the state of my voice. I took a 24-hour saliva cortisol test a few weeks after surgery, and while my cortisol arc is the proper shape, my levels are way too low. I’m sure this issue has been building for years, but I was able to ignore it before my thyroidectomy – honestly, it never dawned on me to check out my adrenals until after surgery, when I was at zero energy and not happy about it.

There’s really only one pharmaceutical treatment for adrenal insufficiency (and to be clear, I’m not at that dire stage) which is hydrocortisone, which I consider a very last resort as it can become a life-long dependency. So, I am working with an incredible herbalist who I met through the Daily Coyote blog and who got me through a severe depression some years ago. She has given me an extensive regimen of plant medicine (herbs, roots, mushroom tinctures, and more) and I have felt such a transformation in mood and energy since working with her.

For a solid two months, it seemed there was a three-legged race going on in my body, with my adrenals on one side and my thryroid replacement on the other, with a lot of stumbling from one side or the other bringing everything tumbling down. And now, finally, thrillingly, they seem to be in sync, zipping around the imaginary meadow of this metaphor with their arms around each other’s waist.

Regarding my thyroidectomy and recovery thereof – in many ways it was more challenging than I expected, and in many ways it was much simpler. Surgery is traumatic, and I think because it’s so common, I was very blase about the event (even though it was a first for me and I was terrified of anaesthesia). I was far more gentle with myself prepping for and decompressing after my big speech! So, my recovery expectations post-surgery were skewed and a little mean. And allowing time for my replacement meds to get regulated and even out was extremely frustrating, in that it required patience, and patience does not come naturally to me. Yet it’s something I’m now grateful for being forced to learn and practice; I actually feel stronger for it. The common thyroid horror stories have not come into play – I’ve not gained weight or entered depression or had my hair fall out. I think having a proper dose based on my symptoms versus TSH range and choosing dessicated thyroid over synthetic have helped me on those fronts.

And tackling my adrenal issues has been (and will continue to be) the keystone in all this. I highly recommend Becki of La Yerberia – she is a biologist-turned-herbalist, and I appreciate the science she shares during consultations (which she does via phone and email – we have never met face to face).

Thanks, again, for all your well-wishes, good vibes, and support!

Comments

44 Responses to “The Health Baloney – Three Months Later”

  1. Abi
    June 2nd, 2015 @ 8:27 am

    Definitely take care of your adrenals! I have Addison’s (adrenal insufficiency), and it takes a lot of work. I don’t have to take cortisol now, but when I did it was harsh on my body (isn’t that strange? It’s less than the amount my body was supposed to make, yet it seemed more severe).

  2. annnoe
    June 2nd, 2015 @ 8:29 am

    I was traveling and didn’t see that you’d given a commencement speech. That is awesome!

    And continued good wishes for good health!

  3. Marg
    June 2nd, 2015 @ 8:44 am

    I’m so glad to read this post about your recovery. I was just put on Synthroid. I asked for the dessicated but the doctors here don’t like it as it is so tough to find the right dose supposedly. Not only that but the pharmacies only carry two kinds, both synthetic. I find myself more tired now than before but thankfully I’m losing a bit of weight that shot up unexplainedly before I was diagnosed. I think I will find a doctor that is more into a blend of holistic and western medicine and hopefully that will help more. So glad to hear that you are feeling better now Shreve. Good luck.

  4. Sheri Nugent
    June 2nd, 2015 @ 8:55 am

    I am so happy to hear that you are doing so well. Time magazine article recently on resilience: recent research showed that resilience is not just a personality trait that some people are born with – it is a muscle that can be made strong. Challenges and difficulties give us the opportunity to exercise that muscle and bounce back faster and better each time. You have shared many of your challenges with us – and it is clear to me that your resilience muscle is strong. Way to go!

  5. Sheri Nugent
    June 2nd, 2015 @ 8:58 am

    Here’s the link to the article if anyone is interested:

    http://time.com/3892044/the-science-of-bouncing-back/

  6. Rose Marie B
    June 2nd, 2015 @ 9:18 am

    Hooray Shreve! Thanks for the article Sheri, truly fascinating and helpful.

  7. shreve
    June 2nd, 2015 @ 9:20 am

    M ~ That was the case with the pharmacies here, too. One pharmacist was super condescending about it but another pharmacist was happy to special order it for me, and offered me a discount in exchange for buying three months worth at a time (which is more convenient for me, anyway). Can you guess which got my business? :)

  8. sybil
    June 2nd, 2015 @ 9:26 am

    BIG hugs. Happy thoughts.

  9. Amy
    June 2nd, 2015 @ 10:30 am

    Good on avoiding the steroids if possible. I’ve been on and off them my whole life for asthma and they really do mess with your biology and emotions. I packed on twenty pounds as a ten year old on them, which is tough to do on an active kid with a whippet frame! Though, if I had to choose between that and breathing, I’d still choose breathing. As an adult, I avoid them when I can. My husband didn’t marry She-Hulk, and my kids don’t deserve a screaming rage monster when they spill things on the floor.

  10. wright1
    June 2nd, 2015 @ 11:41 am

    Glad to hear of your recovery and finding a new center of balance. It speaks well for your resilience physically, intellectually and emotionally. Forward!

  11. judy
    June 2nd, 2015 @ 12:00 pm

    Can you describe how you got started with the dessicated thyroid; who you worked with, a regular doctor or alternative type, where you got the dessicated thyroid and what form is it-pill or liquid and is it expensive – would appreciate all the details since I would like to switch from Levothyroxine to a more natural replacement. Any info you can share would be greatly appreciated.

  12. mj
    June 2nd, 2015 @ 12:42 pm

    I’ve been told that it takes about 18 months to completely recover (strength and energy wise)following a surgery. You get 85% in the first year or less, but the last 15% can take the remaining months to return. Glad you are getting a needed boost and making a better return than most in a shorter period of time, but that doesn’t surprise me with you:) Take care and continue the healing journey.

  13. LJ
    June 2nd, 2015 @ 12:49 pm

    Glad your energy level is moving in the right direction. Take care and be kind to yourself.

  14. shreve
    June 2nd, 2015 @ 2:22 pm

    J ~ Absolutely! Dessicated thyroid comes in pill form and there are a few different manufacturers in the US: NP Thyroid (which is what I take), Armour, and NatureThroid. Each one has a devoted fan base.

    The thyroid gland produces T1, T2, T3, T4, and calcitonin – Synthroid and its generics are, of course, only T4. Dessicated thyroid is all five. Since I have *no* thyroid gland, this just seemed the logical route! Why would I settle for just 1 out of 5 things my body needs and can’t produce? And dessicated thyroid is bioidentical to what our body makes, whereas Synthroid and its generics are not. Dessicated thyroid was *the* thyroid treatment for nearly a century – first documented case was in 1880-something, and that woman lived well into her 80s. It’s not new and definitely not woo woo.

    If you have decent insurance, it should be covered as it is prescription thyroid replacement medication. My insurance doesn’t cover meds until I spend a small fortune, so I pay out of pocket, and it is exactly the same price per month as generic Synthroid would be. Actually, it’s about 30% cheaper as I got a bulk discount from my new pharmacist as noted in my earlier comment above.

    My surgeon specializes in thyroid issues and he is the one writing my scripts, as I don’t have a regular doctor (haven’t been to a doc in 10 years before all this). He has no prejudice against dessicated thyroid and I really lucked out in finding him. A lot of docs, even endocrinologists, seem to have issues with prescribing dessicated thyroid but one has to wonder how much of that is Pharma’s influence…

    Docs who agree with your world view *are* out there – it may take a few interviews, but I imagine asking if they are willing to prescribe NDT (natural dessicated thyroid) is something that could be done over the phone before even setting up the first appt, if finding a new doctor something you need to do.

    Best luck!

  15. Debbie lee
    June 2nd, 2015 @ 2:38 pm

    So happy you are feeling better. Thinking of you and take care x

  16. Lindsay
    June 2nd, 2015 @ 3:01 pm

    Very glad to hear you’re getting better and better and I hope it continues until you feel 100% or find your new normal.
    xo

  17. Maggie
    June 2nd, 2015 @ 4:00 pm

    Thanks for the update! Really glad to hear the energy is returning.

  18. Heidi
    June 2nd, 2015 @ 4:00 pm

    So glad things are continue to improve in your life. I take Solaray Freeze-Dried Adrenal Caps raw gland concentrates.

  19. Patr
    June 2nd, 2015 @ 7:46 pm

    Wow! I’m going to talk to my doc about the desiccated thyroid! I have been on synth round for 20 years and they keep increasing it every 6 months.,

  20. Emily
    June 2nd, 2015 @ 9:15 pm

    So glad you’re feeling better Shreve! :) Wish you many happy days in the future!

  21. mlaiuppa
    June 2nd, 2015 @ 9:55 pm

    Congrats on getting your voice back.

    Give it some time and your adrenals may pop back too. Maybe after a year or two with your thyroid dose stabilized the adrenals will be able to function optimally on their own.

    More and more I am a believer in as natural as possible.

    I’ve been on Synthroid for 40 years. I would love nothing more than to switch to dessicated thyroid but Kaiser doesn’t carry it in their pharmacy so my doctor won’t prescribe it.

    I’ve always been a bit on the tired side no matter how much sleep I get. When my tests come back I am always within range but always on the bottom end. I think if I switched to the natural stuff I might get more energy and perhaps be at the higher end of the range.

    I think I’ll have to wait until I am 65 and switch to Medicare before I can do anything about it. I think then I can go to any pharmacy rather than have to rely solely on Kaiser.

  22. Sandy G.
    June 2nd, 2015 @ 11:42 pm

    Learning resilience when dealing with difficult medical problems is not easy, but it is important as you mentioned. It reminded me of that, since I am now facing my 3rd joint replacement surgery, which sometimes seems like more than I can bear. But resilience, yes, I can do that! Thanks, Shreve. I am so glad you are getting better and getting through your very difficult medical hurdles! Best wishes to you.

  23. Patricia Long
    June 3rd, 2015 @ 6:43 am

    Shreve, I am happy that your voice is coming back and that you are feeling energetic once again. I am glad that you have found the thyroid replacement that works for you. You still have my prayers and good wishes.

  24. scotty
    June 3rd, 2015 @ 7:05 am

    i had hypothyroid that was untreated until somewhat recently. when feeling normal feels amazingly great you look back and realize how drained you really were.

  25. Marg
    June 3rd, 2015 @ 8:59 am

    Thanks so much for the information in 14. I am going to pursue this, might as well get it right from the start ! Someone mentioned steroids, is synthroid a steroid???

  26. Liza
    June 3rd, 2015 @ 9:03 am

    So glad you’re feeling better. Hope your health continues to improve!

  27. Jenny C
    June 3rd, 2015 @ 11:27 am

    Delighted you’re feeling better, both w/voice & energy levels. Such a big deal to have meds in order, a great doc & helpful pharmacist. Herbal remedies can be nothing short of miraculous; thx so much for sharing that info w/us. Here’s to cont’d healing, physical & emotional balance & the strength you need to make your full life work. I continue to hold you in my thoughts, heart & prayers. xo

    Thx for article link, Sheri (5).

  28. sue
    June 4th, 2015 @ 6:00 am

    Have you tried nettle infusions? Nettle is excellent for adrenal health.

  29. Susie B
    June 4th, 2015 @ 8:49 am

    You sound strong and positive, Shreve, and I am so happy for you. Desiccated thyroid is on my list to discuss with my endocrinologist at my next visit. I am convinced our hormones have SO MUCH to do with our bodies. My body is not quite balanced yet, following the breast cancer surgery. I had radiation at the time of surgery on May 1st, and am still trying to put the discomfort of that healing process behind me. I now take hormone suppressing drugs to help stifle any future breast cancer cells, and the jury is out on the effects of that. Keep moving forward — that’s my mantra. Susie

  30. Torchy Hunter
    June 4th, 2015 @ 1:03 pm

    1st A++ on the speech. Very powerful and I hope the grads use it.
    Surgery: an astrologist I knew said you start a new birthday every time you come out of surgery. So this takes a while, new person.
    Mothering: yes, you don’t feel 100%. But the babies have to be fed and seen to, no matter what.Have a friend taking care of her paraplegic husband, and she resents it. Never had kids. Kids, animals, all prepare you to get through stuff you cannot imagine. With strength. You go, girl.

  31. Ginny
    June 5th, 2015 @ 12:29 am

    One doesn’t often see “Health” and “Baloney” in the same phrase. HA!

    So glad to hear about your progress. Glad you don’t have to go through it alone……so many friends.

  32. Theresa Szpila
    June 5th, 2015 @ 9:45 am

    Shreve, I’m glad you are doing so much better and that your energy is returning along with your voice. Good luck with the adrenal problem – your herbalist-biologist sounds like a real gift and I’m glad you found her.

    Still sending prayers and hugs,
    Theresa

  33. Prairie girl
    June 8th, 2015 @ 5:57 am

    So brave. So beautiful. So bouncing back!
    This is exactly what we wanted to hear.
    Marvelous news and that herbalist, you were blessed to have found her.

  34. Diana J. Darling
    June 27th, 2015 @ 8:16 pm

    Hi, I am reading The Daily Coyote and enjoying it.

    In regard to Adrenal problems, I take a simple adrenal supplement just to get thru the day after a lifetime of being on Cortisone and Prednisone. Makes a huge difference in my ability to function each day. I saw a natural M.D. who put me on two kinds of thyroid, one natural and one I get from the pharmacy. Good stuff! Good luck, and wishing you all the best.

  35. Kabayan
    December 16th, 2015 @ 8:42 pm

    Hi Irene! Yes it was wonderful to meet you as well, I had a great time. Thank you about my site, I’ve been wirokng very hard figuring out how to build it. I would love to share my hummus recipe with you but am not ready to post it yet. Could you send me an email through my contacts page and I’ll send you my my word version of it? Funny thing is I was just thinking about you and sending the recipe yesterday, now here you are! I must have channeled my thoughts Hope you’re doing well.

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